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Chronic small bowel obstruction from adhesions

Digestive Health | Last Active: Feb 12, 2023 | Replies (212)

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@hopeful33250

Hello @ginpene05

NETs is the abbreviation for neuroendocrine tumors (sometimes referred to as carcinoid), a rare form of cancer, usually found in the digestive tract. Here is a link to an explanation from Mayo's website, https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/symptoms-causes/syc-20354132

I've copied the first paragraph here:
"Neuroendocrine tumors are abnormal growths that begin in specialized cells called neuroendocrine cells. Neuroendocrine cells have traits similar to nerve cells and to hormone-producing cells. Neuroendocrine tumors are rare and can occur anywhere in the body. Most neuroendocrine tumors occur in the lungs, appendix, small intestine, rectum and pancreas.
Neuroendocrine tumors can be noncancerous (benign) or cancerous (malignant).

Diagnosis and treatment of neuroendocrine tumors depend on the type of tumor, its location, whether it produces excess hormones, how aggressive it is and whether it has spread to other parts of the body."

At Connect, we have a discussion group with lots of posts from those of us dealing with NETs. Here is the link to those discussions,
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?tab=discussions. While this is a rare form of malignancy, there are many of us dealing with.

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Replies to "Hello @ginpene05 NETs is the abbreviation for neuroendocrine tumors (sometimes referred to as carcinoid), a rare..."

Great explanation. I’d be interested to know if anyone with nets has had their gene study done to determine heredity. My gene study showed a mistake in my genes but heredity inconclusive at this point.