← Return to Chronic GVHD at 11 months post stem cell transplant: Discouraged

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Chronic GVHD at 11 months post stem cell transplant: Discouraged

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 10 2:12pm | Replies (24)
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@deb913 Thank You. So far so good. I appreciate your input. I believe I am on a lower dose 40 mg. Hopefully my liver enzymes go down and they can start tapering the dose in January. It's always something I guess we just have to roll with it.

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Replies to "@deb913 Thank You. So far so good. I appreciate your input. I believe I am on..."
marylou329 | @marylou329 | May 10 10:22am

@marylou329 Up Date on Liver GVHD.
The original steroid I was on brought down my Liver functions test. However, a month later at my checkup my liver enzymes went up higher. I was put on 5mg of Jakafi 2 times a day. I just started this past Wednesday May 6th. I feel fine other than occasional itchy legs and arms and some heart burn.
I pray that Jakafi does the trick. I'm not sure how long I will have to be on Jakafi. I have a followup on May 26.
I am disappointed, but I will do what I have to do. Its just a blip in the road to survive.

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