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Orgovyx and severe hip/leg pain
Prostate Cancer | Last Active: 6 hours ago | Replies (16)Comment receiving replies
I was on Lupron for a year then off for a year. I'm now in month 8 of another round of ADT. After 6 months of Lupron I decided to switch to Orgovyx for various reasons. I have been suffering from increasing peripheral neuropathy in feet for some time which can be attributed to degenerative disc disease, but also to ADT. In the last week (8 weeks now on Orgovyx) I've developed rather severe pain in my one ankle which I was attributing to neuropathy but now seems more likely joint related and maybe we can blame on Orgovyx. Interestingly, the morning pain and hobbling for an hour (mentioned above) is exactly what I'm experiencing, and also what many of us have experienced with plantar fasciitis, but for me in the ankle not the heel.
I'm seeing my PCP today and trying to connect with my Urologist.
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@joeck
Have you considered getting gabapentin for the pain in the joints? I take 600 mg three times a day and it really does make a difference in the joint pain. I’ve tapered off of it a couple of times over the last four years and each time the pain in my joints increases So I go back to 600. I do have osteoarthritis so that doesn’t help, Had both knees and one hip replaced, and the other ones real flaky. Gabapentin seems to keep that from getting worse, though Acetaminophen helps as well.
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@joeck I definitely have morning neuropathy...and various aches and pains that ebb and flow mostly early in the day which I now attribute to 6 mos. of ADT ( Orgovyx and Nubeqa)..I have 19 more months to go.
I started with orgovyx and erleada which was a nightmare and luckily Jeff Marchi suggested Nubeqa which I tolerate much better...2 x 300 mg twice daily...( the afternoon/early eve are a bit hard to remember but getting used to the routine)
as I said in earlier post, ADT prob saves most of us but with a price.