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Profile picture for seniormed @seniormed

I was anxious to have testing with a family history in two first degree
relatives. My local neurology consultant did not want to pursue autonomic testing. I sense that they may be hesitant to make the diagnosis prematurely.
I was fortunate to get an appointment with the autonomic team at Mayo
Rochester after a 6 month wait.
I choose to know as I am 78 and want to optimize my planning for the end game.

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@seniormed
Thank you so much for the valuable input. My husband and I are planning for the future by getting on the waiting list for a senior living community with full service as needed if things continue to progress. I am 74 years old and he is 81 - everyone tells us "don't wait too long" to prepare and we are heeding that advice. My next neuro follow-up is in January and I'm anxious to get his opinion on my current status. Fine motor skills are deteriorating some and my gait issues are more pronounced - still no significant tremor. We'll see.