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CALR exon 9 mutation w/translocation of chromosomes 10 &13
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (11)Comment receiving replies
@loribmt Dr. Rashid noticed it when he sat down to talk to me before my botox injections, I had been officially diagnosed the day before and I was giving up the update. Oddly, I never noticed it.
I was recording a video (TikTok...yes I'm one of THOSE people😉😁) and saw something in my eye and when I went into the bathroom I looked more carefully. This latest one has expanded a bit so I've canceled my Amazon Flex delivery run (x2) today and will be going to the walk-in just to get a doctor's eyes on it (pun intended 👁). There isn't any pain with it really, maybe it makes my eye itch but I also do have allergies even in December 🧐🤯.
I started taking 250mg magnesium this past Friday per my neurology nurse as magnesium is supposed to help with headaches and before starting I did contact my oncology nurse and she suggested I take 500 mg however I'd already ordered it and historically I do better in low doses then increase. Apparently magnesium helps to decrease platelets so she's also order me to have repeat bloodwork after several weeks of being on the magnesium.
It's just so bizarre...my MOM always said you get pink eye and/or blot clots in the eyes by peeing in the road and I've not done that in DECADES so this is just weird.
Gotta find the humor otherwise I'd start crying.
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@daelitesmom I think you inherited your mom’s sense of humor! LOL.
You had me ‘raising my eyebrows’ with the mention of blood clots in your eyes! Now that I have more information I think what you mean are subconjunctival hemorrhages, they appear as red patches on the white part of the eye. They can be caused by a number of issues, including your ET, taking aspirin, etc. So, those aren’t generally serious but you’re right to report them.
My concern was that you had blood clots IN the eyeball. I’ve had that happen and it’s an immediate trip to the ER!
I hope you have success with the magnesium in reducing your headaches. If you have any gut issues, one form of mag to take to avoid that is Magnesium Glycinate. Kinder to the gut and very absorbable. What type are you taking?