Complete left side pain, from top to bottom.

Posted by jaaade @jaaade, Apr 3, 2024

hi everyone. looking for insight or someone with similar symptoms and experiences.
here are my symptoms: my whole left side starting from my left eye socket and left jaw, to my left leg pinky toe pain. i'm talking about all of it. left eye socket, left side jaw, left side shoulder including the whole shoulder socket and even towards the back of my shoulder, left bicep, left wrist, left side ribs, left butt lol, left side back of thighs, left calf, left ankle, now my whole heel hurts tho so not just left side, and left side of my edge of my left foot (not my whole left foot just the left edge) and finally my left pinky toe. now the most pain is mostly on my left calf, heel, pinky toe and left shoulder and socket. these symptoms used to be very mild, random and never all at once. since a few days now, I've had these symptoms and they are not going away. i even thought i was having a heart attack and went to the ER when the sharp pain in my chest got added (they've since gone and i normally get those anyway and apparently they're just inflammation related because heart doc didn't find anything in an ultrasound, but it's been 7 years since). they checked me for heart attack and blood clots. lots of exrays and
ultrasound and blood work. there was nothing there.

i'm premenopause, and have hypothyroidism and sjogren's. i'm wondering if it has to do with neuropathy. i do know that consulting a doc is the best thing to do etc etc. the ball is already rolling on that front. i'm just looking for opinions, ideas, personal experiences that are similar etc.. hopefully someone will be able to relate.

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Profile picture for rmshackelton @rmshackelton

@snowmass: I saw a podiatrist for planter -facscittis and convinced me (after 3 months of treating me) to take a steroid shot. I SCREEMED through it. He wrapped the foot up, gave me crutches and to unrap it in 3 days. I did and immediately felt the worst burning 🔥 pain!! Took 14 doctors to tell me it was RSD(CRPS). Gentle hugs

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@rmshackelton i know what you mean. i went thru a list of doctors and imagings (costing crazy $200k to the insurance) and navigating in the dark largely because radiologist/doctors don't read or treat above c2, to find out there are possibly 5 CCI neurosurgeons in US who may be able to help. thanks you and hope you are feeling better too!

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This sounds like me but I have these pains all on my right side and I'm a male. The only way of reducing them I have found is to totally avoid all sugar and eat very healthy, low-ish carb and low-ish fat but avoid all sugar and packaged rubbish like sweets, biscuits and cakes and chocolate etc at all costs and after a week or so the inflammation/pain feeling reduces enough to feel sort of "normal", the pains turn into slight niggles in areas of your body and the brain fog lifts as well.

I've not been diagnosed with neuropathy so I am in a stage of discovery with this still, which has been a 20 year journey and many other tests - bloods, xrays, mri scan on my back etc. But my diet definitely affects my pains, I even feel that coffee and tea does something negative to me so I have cut them out as well. This is totally weird I know but that's my experience.

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Profile picture for dave11 @dave11

This sounds like me but I have these pains all on my right side and I'm a male. The only way of reducing them I have found is to totally avoid all sugar and eat very healthy, low-ish carb and low-ish fat but avoid all sugar and packaged rubbish like sweets, biscuits and cakes and chocolate etc at all costs and after a week or so the inflammation/pain feeling reduces enough to feel sort of "normal", the pains turn into slight niggles in areas of your body and the brain fog lifts as well.

I've not been diagnosed with neuropathy so I am in a stage of discovery with this still, which has been a 20 year journey and many other tests - bloods, xrays, mri scan on my back etc. But my diet definitely affects my pains, I even feel that coffee and tea does something negative to me so I have cut them out as well. This is totally weird I know but that's my experience.

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@dave11
I find that cutting down on my sugar intake helps also.
Dan

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