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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 12, 2025 | Replies (60)

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Profile picture for cash298 @cash298

@captainterry So you lost 10 lbs from being sick or after you started Camzyos? I had been used to doing hour and half pilates in a sauna before all this started, i had to cancel my membership and havent been able to do even housework for over a year, probably longer just didnt realize until it got worse. I am praying Camzyos works for me but I am still seeing Clevelend in March for a 2nd opinion on everything. I am so glad you are doing well and able to lead a somewhat normal life again. Keep up the good work and the inspiration to all of us who arent there yet. 🙂

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Replies to "@captainterry So you lost 10 lbs from being sick or after you started Camzyos? I had..."

@cash298 Loss of weight was gradual after taking Camzyos. Probably because I became more physically active and had developed the habit of eating only two meals a day and drinking more water.
BTW I noticed you were awake very late or early this morning. Your good sleep is very important and a CPAP sleep machine has helped me a lot, although I resisted it at first.
Blessings!