@karukgirl Thank you for the links, I love learning esp when it involves my heart.... I have suffered horrible things for over a year, and so thankful that I have finally gotten a diagnosis that makes sense to me of why all the weird symptoms (I am a DNP so of course it was driving me crazy, and I had never heard of this). Luckily my Boss is a national nephrologist and knew about it and insisted I make the appointment with Cleveland. I just took the heart monitor off, and I started Camzyos on Monday night. Here's the weird thing, even though it isnt supposed to work right away, I felt like a new person the very next day after starting this strange new drug. Its very very weird, I am waiting for the symptoms to start back up any minute though. Have you ever heard of this?