← Return to Anyone else out there with extremely high lipoprotein (a)?

Discussion
Comment receiving replies
Profile picture for elle7 @elle7

I have lp(a) of 628 nmol/dl. Found out 2 years ago and have had to search hard for treatment. 1st cardiologist said wait until you are at least 50% blocked and then we can do a stint. Had to search hard to be listened to and get plan of action. It can increase after menopause and HRT can help. I am on statins and zetia. I pay out of pocket for CIMT each year to monitor carotid artery plaque. I will get a pcsk9 inhibitor if it gets anywhere near 50% blocked. Lipidologists say because I am old if lp(a) was going to kill me I would be gone by now so did not give me pcsk9 inhibitors. I will find someone who will give me them if I get anywhere near 50% come hell or high water and how old I am. My worry is it has increased after menopause and will cause rapid plaque formations but they were men. I also found out I have osteoporosis per DXA same week as lp(a) and that was another journey of stupid in the health care system. Get a REMS Echolite test to compare to DXA if you get this chronic condition. No wonder health care system is costly…more expensive to let me live 20 years drooling in wheelchair rather than get ahead of chronic conditions.

Jump to this post


Replies to "I have lp(a) of 628 nmol/dl. Found out 2 years ago and have had to search..."

@elle7 , how do you get a CIMT? Can you arrange it yourself or is a physician involved?

@elle7 my husband had LP(a) 940. Doctors had to do open heart surgery for him and he is absolutely fine since than . Doctor suggested stenting does not help with LP(a) as the stent will be covered with plaque soon so this was the only option . Hope it helps