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DiscussionAnyone on VYVGART Hytrulo, a new treatment for CIDP?
Autoimmune Diseases | Last Active: Apr 30 1:11pm | Replies (89)Comment receiving replies
Replies to "@thecaptken153 how scary. I am sorry you experienced that.There does appear to be some differences in..."
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@theresaag
I’ve been on weekly IVIG for almost four years. Started with Octagam then Jan this year switched to Privigen. 450 ml per infusion. It keeps me at a normal level like nothing is wrong. Switched to Vyvgard in June under the supervision of CVS who handles the medication plus an online nurse from Argena that phoned often. With both CVS and the case worker, when I started failing and had questions, they didn’t have answers for me the case worker nurse actually told me she wasn’t allowed to answer. So in three weeks I went from fully normal to wheelchair bound and using a bedpan. I lost 22 pounds