← Return to CALR exon 9 mutation w/translocation of chromosomes 10 &13

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@daelitesmom Just a follow-up question to my last reply https://connect.mayoclinic.org/comment/1457690/

Regarding the blood clots in your eye. You mentioned your neurologist noticed a blood clot in your eye at a previous visit. I’m curious how he discovered this. Did he look into your eye using a Slit lamp or ophthalmoscope? How did you notice you had a 2nd one within 6 months? Did you have a vision disturbance or lose sight in the eye?

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Replies to "@daelitesmom Just a follow-up question to my last reply https://connect.mayoclinic.org/comment/1457690/ Regarding the blood clots in your..."

@loribmt Dr. Rashid noticed it when he sat down to talk to me before my botox injections, I had been officially diagnosed the day before and I was giving up the update. Oddly, I never noticed it.

I was recording a video (TikTok...yes I'm one of THOSE people😉😁) and saw something in my eye and when I went into the bathroom I looked more carefully. This latest one has expanded a bit so I've canceled my Amazon Flex delivery run (x2) today and will be going to the walk-in just to get a doctor's eyes on it (pun intended 👁). There isn't any pain with it really, maybe it makes my eye itch but I also do have allergies even in December 🧐🤯.

I started taking 250mg magnesium this past Friday per my neurology nurse as magnesium is supposed to help with headaches and before starting I did contact my oncology nurse and she suggested I take 500 mg however I'd already ordered it and historically I do better in low doses then increase. Apparently magnesium helps to decrease platelets so she's also order me to have repeat bloodwork after several weeks of being on the magnesium.

It's just so bizarre...my MOM always said you get pink eye and/or blot clots in the eyes by peeing in the road and I've not done that in DECADES so this is just weird.

Gotta find the humor otherwise I'd start crying.