← Return to Like to know more. Just told I have Triple Negative MPN.

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@mmkennedy
You are not alone. I was diagnosed at 48yo with ET. I am now 71 yo and doing well. I now know I am also a triple negative (we did not know about these things back in 2002). I have had 2 bone marrow biopsies. The biopsies were not as awful as my fears predicted. I was in good hands or lucky, I am not sure but I did very well and did not suffer at all. I am on hydrea and baby aspirin. I think they can find a blood thinner(aspirin alternative) for you since you cannot take aspirin. I have a local oncologist that specializes in blood cancers and I have seen 3 different MPN specialists at Mayo in Rochester and Arizona as consults. Fell free to ask me anything. Sending love and hope. Lynne

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Replies to "@mmkennedy You are not alone. I was diagnosed at 48yo with ET. I am now 71..."

@lynnevb

Hi Lynne

Thank you for sharing some of your story. It is encouraging that others have an improved quality of life with Hyderabad has improved - and that you managed okay with the biopsy.

Many thanks
Meg