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Profile picture for georgiagurl @georgiagurl

Goodness, still waiting for Fish Test results after 3 weeks of waiting. The hematologist’s nurse practitioner called to explain that doctor wants to me to begin treatment for MM regardless of not having fish results; Nurse said doctor’s decision is based on free light chain ratio of 101 and kappa level of 89. Pet scan is normal but igm is below normal at 18; iga is low normal at 76 as is igg at 660. Plasma cells at 8-10%. I still haven’t met the doctor because nurse practitioner has been handling everything. I am not sure if treatment is necessary at this point. But shouldn’t doctor have called me to set up an appointment to discuss all this?

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Replies to "Goodness, still waiting for Fish Test results after 3 weeks of waiting. The hematologist’s nurse practitioner..."

@georgiagurl I would definitely want an appointment before starting treatment, and it seems a little strange that your doctor didn't. There are important issues to discuss - including, of course, starting treatment itself. As we noted above, your presentation is similar to mine, although 8-10% (vs 5-7%) plasma per BMB.

I know you're satisfied with your hematologist who specializes in cancer, but there is still something to be said for a dual-certified hematologist/oncologist with considerable experience in treating monoclonal gammopathies. This is complex stuff.