Hi Lesa458,
I'm so sorry that you have had and are having such terrible problems and for most of your life!! How awful for you! That's too bad that the doctors aren't taking your situation more seriously! I would think a trained medical proffessional would find your complicated situation an interesting challenge from a medical standpoint to figure out. Doctors are supposed to help us!

I don't have anything like this but I would suggest that you check the side effects of all of your medications and over the counter medications to see if any of them interact with each other or cause some of your symptoms. Also research what healthy foods might help with your symptoms and eat those foods more often. I know that at age 79 when I'm not feeling my best I eat nuts or yogurt and drink tea. They help me feel back to normal again. Try and find what healthy food or beverages works for you. By healthy I'm referring to foods with no preservatives in them. Also drinking a lot of water really helps your body too. As we age we need more water than we used to. At least I do. Water flushes out all the impurities in your body and that helps your body to heal.

The other thing that works well is prayer. Ask God for his help. Just talk to him like he's your best friend and he is! After all, he made you and he can fix you! I'll say a prayer for you also.
I wish you the best.
PML