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Colleen Young, Connect Director avatar

Adult Cystic Fibrosis (CF): Share your story & connect

Cystic Fibrosis | Last Active: Apr 16 6:56am | Replies (27)

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@ckscoville, may I ask how old you were when you were diagnosed? How was your CF discovered?

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Replies to "@ckscoville, may I ask how old you were when you were diagnosed? How was your CF..."

@colleenyoung I had just turned 73 when I was diagnosed four and a half years ago. After numerous lung infections and bouts with pneumonia -- none of which had raised any red flags with my primary care doctor or the pulmonologist I had seen at the area hospital -- I got an appointment to see a pulmonologist at the Mayo Clinic in Jacksonville. He told me I had Bronchiectasis, and both he and an infectious disease specialist at Mayo began treatment. After a couple of years, however, the pulmonologist said that my disease simply wasn't behaving the way he expected, and he ordered testing for Cystic Fibrosis, even though that seemed unlikely. I had a sweat test which came back positive. Mayo then ordered a DNA test that was sent off to Johns Hopkins. Shortly after that, and a few days after my 73rd Birthday, I received a call from a CF nurse at Mayo telling me that I had CF!