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Colleen Young, Connect Director avatar

Adult Cystic Fibrosis (CF): Share your story & connect

Cystic Fibrosis | Last Active: Apr 16 6:56am | Replies (27)

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Profile picture for gails53 @gails53

I'm a 72 year old who was diagnosed after treatment for CLL (Obinutuzumab and Veneteclax) caused severe pulmonary issues. My Oncologist didn't think they were treatment related but finally had to stop treatment after 7 months of a 12 month course. I ended up at Mayo clinic in April of 2025 in a wheelchair and on supplemental oxygen. I have been extremely active my whole life and exercised daily until I couldn't. In four days Mayo was able to diagnose me with Bronchiectasis, CF related disease and severe immune deficiency. The pulmonary issues were brought on by my cancer treatment. I am now on AWC 2/day, Nasal Rinse with a steroid and antibiotic 2/day, Pulmozyme 1/day, Azithromycin 1/day and weekly Hizentra (immunoglobulin) infusions at home. Since Mayo (and NJH) I am back to exercising and hiking and getting back to enjoying life. Anxious to hear other stories.

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Replies to "I'm a 72 year old who was diagnosed after treatment for CLL (Obinutuzumab and Veneteclax) caused..."

@gails53, such an amazing story from wheelchair to hiking with a proper diagnosis. What type of cancer did you have? Do you still use supplemental oxygen?