← Return to Adult Cystic Fibrosis (CF): Share your story & connect

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Colleen Young, Connect Director avatar

Adult Cystic Fibrosis (CF): Share your story & connect

Cystic Fibrosis | Last Active: Apr 16 6:56am | Replies (27)

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Profile picture for Pug, Volunteer Mentor @ckscoville

@colleenyoung I am so grateful for a place for those of us with Cystic Fibrosis. Thank you! I want to encourage others to join in the conversation. As someone who was diagnosed with CF late in life, I am regularly shocking people -- even medical professionals -- when they hear I have CF, because in the past the disease often prevented anyone from reaching my age. [Of course, when I wss young, even after I was hospitalized with a lung infection, I don't think many babies and children were tested for CF.]

I hope others will share your story, concerns, ideas, and questions here. Looking forward to getting to know fellow patients!

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Replies to "@colleenyoung I am so grateful for a place for those of us with Cystic Fibrosis. Thank..."

@ckscoville, may I ask how old you were when you were diagnosed? How was your CF discovered?