Continued hormone therapy? or not?

@dsingstock

I’ve been taking 600 mg of gabapentin three times a day for a few years. It never helped with my hot flashes. I take it for joint pain from osteoarthritis.

I had really serious hot flashes from ADT. You need to get your testosterone checked every time you get your PSA checked that will show when your hot flashes should stop happening, Usually around When your testosterone gets close to 200. When I had really serious hot flashes, my oncologist recommended I get depo-provera Shots every three months. They made a major difference and reduce my hot flushes to almost nothing.

I have an embrlabs.com wave product (wave 2). I’ve used it for Over five years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough.

They cost $300 but they have a special deal for $100 off if you use the code BFCM25. They have a 60 day moneyback guarantee. If you do get one post a message on this forum and I can send you the instructions for setting it up ideally. I paid a test of the product five years ago and worked with the company regularly to debug problems that come up.
https://embrlabs.com/
You might ask your doctor to put you on Nubeqa instead of Xtandi. It has a lot fewer side effects and doesn’t pass the blood brain barrier which causes brain fog with drugs like Xtandi. That’s Darolutamide versus Enzalutamide, Two very similar drugs in how they work. I’ve been on Nubeqa For almost 3 years and I’ve been undetectable for the last 25 months after four reoccurrences and 16 years of PC. I noticed absolutely no side effects from that drug.

@dsingstock my neuropathy got better by taking vitamin B complex and Taurine. Taurine also has some good effects on PC.
Good luck 👍

My doctors tell me that prostate is tricky. You think it's gone and it's not. The PSA goes down with ADT, but that ultimately doesn't mean anything. The fact that you are not at zero is significant. Get it down to zero for a year, and maybe you won.

@lacraig1
I don’t think Many people get it down to zero. < .001 maybe a few rare cases. < .006 The minimum of some machines. < .1 What is considered undetectable by the medical community.

I’ve been < .1 for 25 months but it is a matter of time before it comes back for the fifth time.

It is really useful for somebody that is undetectable for a year to try taking off from the drugs to see if their PSA stays down. If you have a high decipher score or an equivalent test score, then be careful.

You say it keeps coming back?

how long have you been dealing with this?

@lacraig1

An idea of what could be possible

In 2010 I was 62 and a biopsy showed Gleason 3+4. My father died of prostate cancer and he had radiation so I decided to have surgery. After surgery they told me it was a Gleason 4+3. It was only stage two. 3.5 Years later it came back, I had a Lupron shot 2 months before 8+ weeks of radiation. 2 1/2 years later it came back and I went on Lupron. I became castrate resistant 2.5 years later and added biclautamide. 1.25 years later went on Zytiga, which kept my PSA down for 2 1/2 years. After some AFIB Issues I switched over to Nubeqa. The last 25 months I’ve been undetectable. I became stage four about six years ago, had a metastasis on my spine zapped 2 years ago I did not find out I was BRCA2 Until five years ago. That’s why it keeps coming back, I’ve had four reoccurrences.

wow
I"m lost for words.

I had lymphoma which my doctor has no traces of it in my body

Prostate cancer is like one of those monsters in the movie that just won't die

@lacraig1
That's not an answer. Any suggestions?

@kujhawk1978
Thanks so much, that helps.

your case is very close to mine. I had the RP in April. my Gleason was 7. My urologist who specializes in prostate cancer said to see an oncologist when my PSA began rising rapidly. .1 >.18
Tue 0ncologist wants 2 years of ADT plus radiation. Lupron is the ADT with Zytiga. Both the oncologist and the radiologist said a low PSA is expected at this point but no indication of progress. The cancer can adapt to testosterone deprivation. Continuing ADT is something rather than nothing. I would ask both what's next? If not ADT, then what? If ADT, will that cure this? My PSA is .01. They want to go full speed ahead. I start radiation Wed. I don't know the endpoint.