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Could this be Amyloidosis?

Blood Cancers & Disorders | Last Active: Jan 10 12:11pm | Replies (21)

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Profile picture for sigman @sigman

@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy and tested positive for amyloidosis in my bone marrow.

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Replies to "@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy..."

@sigman I hope your amyloidosis treatment is effective. Amyloidosis is a hard. My bone marrow (MGUS), fat pad, and kidney (MGRS neg) biopsies tested negative, but all biopsies just test a small area that may or may not be affected. My BMB tested at 16% deranged plasma cells, which is within SMM; because the plasma proteins tend to clump so hit-or-miss risk with the test, and I have no symptoms my oncologist thinks I am still MGUS.

@sigman, is this a new diagnosis for you? What treatment is being recommended? How are you doing?