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New Bronchiectasis diagnosis - need advice
MAC & Bronchiectasis | Last Active: 8 hours ago | Replies (33)Comment receiving replies
@ejr
Hello Ed!
Thank you for that very informative post. I'm in NJ, or would take advantage of your UT Tyler Dr recommendation, but will look into the option of using the lab you mentioned after reading more about it on line. I also have Bronchiectasis and MAC Intracellular (with small nodule). No symptoms though. Wondering what your Dr's approach is - besides closely monitoring sputum tests. Any info you can share would be appreciated.
Also - very much appreciate this group. The information is so very caluable.
Pat
Replies to "@ejr Hello Ed! Thank you for that very informative post. I'm in NJ, or would take..."
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@jgb1997 Do you know that National Jewish Health and Mt. Sinai in NY work together. Going into NYC even from Jersey can be a chore.???? NJH has the best lab for testing sputum in the US...and Tyler is probably just as good. They, so far, are the only two labs that can identify specifically the type of MAC involved....from my understanding...however... I maybe wrong since you do know you have Intracellular. Where was your sputum tested?
Hello to my home state in NJ.. I have family in Belmar.
I have been in OKC for years now and have gone to Denver and Tyler for care. The Denver pulmonologist put me on watchful waiting (2023) and I continue to keep myself on watchful waiting. I just turned 83 and 2 months "young." So it is possible to stay feeling well for a good while.. I mask always in public. I have had a small count of intracellular since Oct. 2023 but chose not to go on the antibiotics and continue to watch it. It has not grown much per the last sputum test. I also have a small nodule. I feel well and have not had an exacerbation. Just the need to clear mucus several times a day and of course during the nebulizing sessions. Some mornings I feel tense after my "therapy" sessions of exercise, nebulizing, postural drainage and huff coughing.
Barbara