@cash298 Yes, initially I was to see one of the long-time docs but then they brought in someone new to handle the Camzyos program. He told me he'd start me on 5mg. After some time I had to call to find out what was going on and they had over-looked my file so they got the ball rolling. When it was delivered it was 10mg. I called and the nurse said she'd ask the doc and he said no, he spoke of 10mg then they evaluate and go up or down, but he has to start all patients on 10. Both my husband and I clearly remember him saying 5. Well as I said in my initial post, I could not handle it, and yes, because of that ultimate side effect of heart failure, and this SOB I experienced and overall feeling, I stopped it, because it does have a long half life in the body. I feel I know myself better so I had to do it. I wish it turned out different. And no, he would not lower the dosage. I don't know if weight of a person means anything but I'm a petite woman at 95 lbs. I feel like this condition has ruined my life and he even said I might be too frail to get a surgery. He is a young doctor and I wonder if it's his first on the job experience, I really don't know, but I'm seeing another practice soon. This place is too large, too many docs and appts are no less than 4-6 months out. You cannot just call and make an appt. My new appt is only a month out, but that's better.

@cash298 Also, let me add, I am a DNP and I have been in all the hospitals in Louisville..... eek, there is no way I would have surgery here unless its was a dire emergency.