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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: 32 minutes ago | Replies (337)Comment receiving replies
@christina3444 thanks Christina it’s nice to know we’re not alone in trying to figure this out, I’m definitely interested in the holistic approach where somebody will join the dots and give helpful solutions, you seem to have much more access to a big range of services not so much here in Ireland but in saying that the Mayo clinic is very informative, it’s a good age to have health problems as we have so much access to information on the internet. I too have managed my diverticulitis with plenty of fibre , I use a product called inulin it’s a chicory root fibre and a probiotic and come in a powder form that you sprinkle on cereal or add to fruit juice and the good thing I like about it is that you don’t get bloated on it as I did with fibrogel , I get most of my supplements on IHERB and they deliver very quickly , just another question, I’ve to have a bone marrow biopsy next Thursday 11th and am feeling very anxious about it did you at any stage have one and how did it go?
Replies to "@christina3444 thanks Christina it’s nice to know we’re not alone in trying to figure this out,..."
@roughanne I had a biopsy in the Interventional Radiology facility on October 14 using a CT scan to fine tune location and under sedation. They gave me a sedative and a bit of fentanyl to help block pain. I felt nothing until the end when they "vacuumed" out the last of the blood, but it was momentary and not terrible. I remember saying "Ouch" and that was it. I had to really fight with my Oncologist for the sedation because she has bone marrow rooms within the cancer center but they don't do sedation there.
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@roughanne Hello! I am lucky to have the resources of Mayo near where I live in Arizona.
And, no, I have not had a bone marrow biopsy. At my first visit with the hematologist I have now, she told me that if the HU and phlebotomy didn’t keep things under control that would be the next step.
I expect one of these days it will be advised.
I completely understand your being anxious about it. I know I would be. What we haven’t experienced is usually all the more frightening. But, I’m 77 and I’ve learned from experience that almost anything we approach with dread isn’t nearly as bad as we thought it would be. I had a series of epidurals for my back before they were done in the hospital, under anesthesia and with ultrasound! I was in the doctors office sitting on exam table leaning forward into the nurse, tears pouring down my face….i survived that!
If you’re comfortable with your doctor/s then trust them and from what I’ve seen here, ask for drugs! And, my go to is prayer…when I had nightmares as a kid my grandma would have me say the Hail Mary over and over and like any mantra, I would fall asleep. So, if you’re not Catholic, just repeat whatever “mantra” you’ve got.
I’m certain your post will get plenty of reactions from others who have had the procedure.
I will think of you on the 11th and when you can please let us know how it went.
Christina