Connect
← Return to What to do when diagnosis does not match symptoms?
Discussion
What to do when diagnosis does not match symptoms?
Brain & Nervous System | Last Active: Dec 10 12:11pm | Replies (9)Comment receiving replies
@mlorena have you considered stopping your search for an answer? It’s not uncommon anymore for doctors or other providers to say I don’t know what’s wrong with you. You might consider posing your symptoms on ChatGPT to see what pops out since conventional medicine has failed you?
Replies to "@mlorena have you considered stopping your search for an answer? It’s not uncommon anymore for doctors..."
Connect
@jenatsky I have, however when I have looked into it more my symptoms align with PLS. However they want to dismiss that due to normal imaging and nerve test. Which I can see, however per the criteria for PLS they can not rule out the diagnosis for PLS just in that. PLS is diagnosed by:
✔ Clinical signs (hyperreflexia, spasticity, abnormal gait)
✔ Slow progression over years
✔ Normal EMG early on (very important)
✔ Normal MRI
✔ Excluding ALS and MS
There is no blood test, no MRI test, no EMG test that “shows” PLS.
So you can tell your doctor:
“PLS is a clinical diagnosis based on upper-motor-neuron signs and slow progression, and it commonly has normal MRI, normal EMG early on, and normal CSF. My pattern of symptoms fits PLS, so I want a re-evaluation using the 2020 consensus diagnostic criteria.”
This is medically accurate.