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Rheumatoid Arthritis (RA) - Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 24, 2024 | Replies (878)Comment receiving replies
Hi everyone! I am 54 and was just diagnosed with palindromic rheumatism also called seronegative rheumatoid arthritis. I have had 3 flare ups and these include painful and swollen hands and wrists and feet. Also have pleurisy. Started taking plaquenil at the beginning of November. Hasn’t helped yet. Also prescribed prednisone to help with flare ups. The difference between RA and what I have is I go back to completely normal between flare ups. But it can turn into RA eventually. Anyone else out there have palindromic rheumatism?
Replies to "Hi everyone! I am 54 and was just diagnosed with palindromic rheumatism also called seronegative rheumatoid..."
My daughter is 59 and has had this since she was in her 20's. It was so rare then no Doctors knew what she had (we went to 13 specialists).. She one day tried Aleve 7 tablets of the over the counter pills. We were thrilled that this worked within an hour of her episodes. She has asked over the years several Doctors and they agree if she only now has to do this once a month sometimes 2 months and it works she should continue this. There is still no cure that I see when checking Mayo Clinic and John Hopkins web sites.
I am so sorry you have this andd hope this helps you
Hi, I realize this is an old post but I just joined the panel. Back in 2013 I was diagnosed with palindromic. I changed my entire life by keeping a food and flare diary. I cut out all sugar, gluten. processed food, and nightshade vegetables. Started a strength training routine. My first rheumatologist wanted to put me on heavy duty meds right off the bat and I said no. Thankfully I went to mayo and have connected with a great doc that actually listens to my concerns. Yes, I was /am on prescription drug to help control (sulfasalazine). This past year (2023) my symptoms have changed and I am back on the research trail 🙂 Let me know if you have found any alternative relief/non pharmaceutical please! Thanks
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Hello @kimdett, Welcome to Connect. I'm sorry to hear the plaquenil hasn't helped yet with the flare ups yet. Did your doctor or rheumatologist say anything about how long it might take for the drug to start working or if there might be another treatment that might help?
I found the following articles on Palindromic Rheumatism treatments and things that may be helpful:
Arthritis Foundation -- https://www.arthritis.org/about-arthritis/types/palindromic-rheumatism/
Palindromic rheumatism - Arthritis Care (PDF) -https://www.arthritiscare.org.uk/assets/000/001/856/Palindromic_2017_Update_original.pdf
PubMed -- Palindromic rheumatism: effect of dietary manipulation.
-- https://www.ncbi.nlm.nih.gov/pubmed/10895376