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Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Prostate Cancer | Last Active: 4 days ago | Replies (27)Comment receiving replies
@carter777 Thank you very much for sharing this valuable information. Based on what you and Jeff have said, it seems like our situation lines up well for proton therapy. I am going to look into it. I understand it is used in more delicate situations like ours. Our MO says we should use systemic therapy because of the risks involved with radiation, but maybe he didn’t consider proton beam? I will watch Dr. Rossis YouTube videos. I can think of worse places to travel to than San Diego! So you will stop the Orgovyx in April and then recheck the PSA? Thanks again and I’m glad to hear of your great outcome.
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Hi @ucla2025 ,
Yes, the current plan is to stop the Orgovyx in April, then my next PSA test would be about June 5, 2026 (16 months from the end of radiation.) I plan to see Dr. Rossi for a follow-up before then; it's possible the plan could change. I am really looking forward to seeing him again. I will fly to San Diego for a bit of vacation and to see some friends of mine there and escape some of the Minnesota winter.
Please remember that I am just a layman so I don't know that Dr. Rossi would be able to treat your husband. But if you make an appointment, and I would I highly recommend that you ask for Dr. Rossi specifically, then they will gather your husband's records and scans and Dr. Rossi will review them and will consult with you, go over the records and scans with you and give you an honest and direct opinion about what he thinks would be best and why.
Do you have a count of the number of the actual number of currently known metastases? Oligometatastatic prostate cancer is usually considered considered 5 metastases or fewer, and this count could impact whether radiation is deemed appropriate. Also, if some metastatic nodes are very close to or abutting organs, such as the intestines, rectum, and bladder, that could make it very difficult to radiate those nodes without causing severe damage to those organs . For my treatment Dr. Rossi was able to safely radiate all of my pelvic nodes and one questionable aortocaval node, as well as my prostate of course. My PET scan showed no definitive evidence of metastases but he treated all of these nodes as a precaution.
Also, I just wanted to point out that the hormone therapy your husband is receiving now, Orgovyx and Nubeqa, are not hormones themselves. Orgovyx is a drug that acts on the pituitary gland to decrease your husband's production of the hormone testosterone. Nubeqa is a drug that inhibits the androgen receptors on prostate cancer cells from absorbing testosterone. (From your posts I got the impression you may have misunderstood this. Apologies if I am mistaken... 🙂 )
Be sure to check with your husband's insurance company to see if they will cover treatment proton beam therapy for prostate cancer from Dr. Rossi. If he has original Medicare there will not be an issue. If he has Medicare Advantage or insurance through an employer you may have some issues. I ran into problems in that respect but, thanks to the dedicated staff at California Protons, got everything approved eventually.