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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jan 23 5:55pm | Replies (339)

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@irishnanny3 Hello. Based on what I have read about PV, it appears to me that there just isn’t a lot of research about it at this point. Until you have a stroke or develop a blood clot and it’s determined you’ve got PV/JAK2, nothing. But, reading what I’ve read in this forum, there seems to be indications that suggest there may be other conditions that are precursors/warnings such as diverticulitis. Or, not!
I had terrible pain in my knee the day before I was to visit my GP for a regular blood test for thyroid. That turned out to be gout! But, for that coincidence I probably would have just taken a pain med and used Aspercreme.
I’m glad you’re doing well! Last time I had blood drawn my hematocrit (that’s my indicator) was as good as it’s been in 3 years!
I only wish they could tell me why!

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Replies to "@irishnanny3 Hello. Based on what I have read about PV, it appears to me that there..."

@christina3444
Very happy that your bloodwork was good
Mine has been too!
After I was diagnosed I did lots of research and learned that tinnitus is one indication, fingers that feel cold and look bluish( had both of those) are another
Stuff like that is so random, don’t know how you’d guess
And who ever heard of PV??
Happy holidays and stay well