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Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Prostate Cancer | Last Active: 4 days ago | Replies (27)Comment receiving replies
Hi @ucla2025 ,
I can second the recommendation of @jeffmarc of Dr. Carl Rossi at California Protons in San Diego for a second opinion of your husband's situation. Dr. Rossi treated my Gleason 8 (pre-treatment PSA = 7.9) localized prostate cancer with proton beam radiation (Dec 2024 - Feb 2025), and Orgovyx which I started in Oct 2024 and will continue until April 2026. My first PSA test result 4 months after radiation was "< 0.04", and my second PSA test result six months after that was also "< 0.04". I cannot tell you how happy I am about the treatment I received from Dr. Rossi and the team at California Protons. Besides being a great doctor, Dr. Rossi is a wonderful human being and you would enjoy consulting with him. He emphasizes patient quality of life in his treatments. There are quite a few videos on youtube where he discusses proton beam therapy so you can get a bit of background on proton beam there. The more you know before your consultation the better the questions you can ask of him.
You may have to wait a bit for an appointment with him as he does not do that many. You can probably do an initial consult with him via telehealth, as I did (I live in Minnesota.)
Also, if your husband needs to stay in San Diego during treatment and is a veteran, he and you may be able to stay at Fisher House at Naval Medical Center San Diego (at no cost) and then commute to California Protons as needed. This is what I did, and I cannot say enough positive things about Fisher House and their staff.
I just wanted to make a couple of small corrections about what Jeff said about Dr. Rossi's experience. Dr. Rossi did his medical residency at Loma Linda University and then practiced there for many years. Loma Linda was the first commercial proton beam facility in the US. In 2013, Dr. Rossi moved to the California Protons clinic in San Diego (formerly Scripps) as medical director. To date, Dr. Rossi has treated over 13,000 patients, and over 9,000 of those were treated with proton beam therapy.
Best of fortunes to your husband and you! Feel free to reach out to me if I may provide more information.
Replies to "Hi @ucla2025 , I can second the recommendation of @jeffmarc of Dr. Carl Rossi at California..."
@carter777 Thank you very much for sharing this valuable information. Based on what you and Jeff have said, it seems like our situation lines up well for proton therapy. I am going to look into it. I understand it is used in more delicate situations like ours. Our MO says we should use systemic therapy because of the risks involved with radiation, but maybe he didn’t consider proton beam? I will watch Dr. Rossis YouTube videos. I can think of worse places to travel to than San Diego! So you will stop the Orgovyx in April and then recheck the PSA? Thanks again and I’m glad to hear of your great outcome.
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@carter777
At the PCRI conference in 2023 Dr. Carl Rossi spoke and discussed his use of proton radiation for over 30 years. Just before he started speaking, they introduced him and mentioned his 30 years of using proton radiation.
Dr. Ross speaks in this video from PCI at around 3:38. It’s Sort of strange that it shows three minutes when he starts talking But when you drag the dot at the bottom of the screen to find his talk, it’s at 3:38
A quick search of Dr. Carl Rossi will come up with this information
Specializing in proton beam therapy, he has been treating prostate cancer patients with proton therapy since 1991.
Source
https://www.californiaprotons.com/team-member/carl-rossi-md/
He does work at California Protons A part of UCSD.