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← Return to Waldenstrom macroglobulinemia (WM): Deciding treatment options
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Waldenstrom macroglobulinemia (WM): Deciding treatment options
Blood Cancers & Disorders | Last Active: Apr 1 6:05am | Replies (62)Comment receiving replies
Good morning @ewash55, I was initially diagnosed with MGUS with IgM levels above 500. This was discovered during a routine blood test. I had and still have low lung capacity, but always assumed that was from earlier lung damage. Three months ago, a BMB confirmed WM Wild Type (no MYD88 and CXC4 mutations). My labs show anemia, but not too bad yet. I'm holding off on any treatment (Watch and Wait) for the time being.
Replies to "Good morning @ewash55, I was initially diagnosed with MGUS with IgM levels above 500. This was..."
@dcuste I was diagnosed with WM back in April after a fall. IgM of 6000 and bone marrow biopsy confirmed it with the mutations. 6sessions of chemo and infusion therapy have reduced the number to 1643; where it has stopped responding so therapy. Any ideas?Seeking second opinion at Dana Farber in Boston!
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@dcuste Thank you for your response! I return to the doctor today and hope to leave the appointment with a plan. My IgM level is nearly 3000 but the symptoms I have are worsening so I believe that Watch and Wait is over for me.