@tomrennie I thought it was you 🙂 This is going to be a bit long. Sorry in advance. I saw Dr. Pommier last Monday. He is definitely the doctor I should have seen first. He has an excellent bedside manner, and he reviewed all my chart notes before seeing me. He said there are two diagnostic possibilities. One was a very small typical carcinoid tumor, which I was operated on for. The second possibility is that I have DIPNECH (diffuse intrapulmonary neuroendocrine cellular hyperplasia). He felt the later was the correct diagnosis because the pathologist called the tumor a " tumorlet" on the biopsy report. He said there is no way to tell if I have DIPNECH without looking at the other 3 nodules I presently have. He is not going to do that surgically. He recommends wait and watch. I looked him straight in the eye and asked if he would have operated on the first tumor. His words were "I'm not going to lie to you...no". He left the room for a minute and I burst into tears. He is going to address the horrible pain I have been in for 5 months through a referral to pain management, and see me again to possibility start injections of Sandostatin LAR therapy and assess symptoms and PTFs. None of this verbiage was even mentioned by the surgeon who operated. The fist surgeon just continued giving me time to heal without honestly addressing the constant pain issue. I cannot thank you enough for your knownowledge in recognizing that I needed a second opinion from a NETs specialist. You wanted me to let you know what I thought about him, (for giving further referrals). He obviously knows what he is doing, and I am sticking with him as my cancer doctor. Thank you SO much.
B.