Connect
← Return to Severe RLS solved for me
Discussion
Sleep Health | Last Active: Jan 3 7:43pm | Replies (51)
Comment receiving replies
Your story is inspiring, since I also have RLS and thus severe sleep deprivation. I am glad you found relief with a drug protocol that seems to work for many people. I attended a RLS support group just today and heard several people talk about this drug therapy. I also augmented on pramipexole, so I quit cold turkey and started trying to find a more natural way to treat the symptoms. Unfortunately, I don’t think such an approach is viable, but I just don’t want any more meds. I would love to share your story if that’s okay with you
Replies to "Your story is inspiring, since I also have RLS and thus severe sleep deprivation. I am..."
Connect
@reillyg1013
Share my story if it will help. I hate doing meds but it is the only choice I have if I want to live. I don't say this lightly. I was so close to taking my own life because what I was going through was not living, not even existing, it was 24 hr/day agony. As I stated in my initial post I tried every medication and life style change there is on the books. Since my last posting I have stopped the dopamine agonists per my doctor's recommendation. Evidently the latest clinical data has shown dopamine agonist to have significant long term adverse affects but the Neupro was augmenting anyway and become much less effective. I am now on only one medication, 15-20 mg of Methadone per day. I hate it. I cannot stop taking it without severe withdrawal symptoms and horrible RLS recurrence. So I live with a dependency on Methadone and the resultant perpetual constipation side effect. The Methadone does keep my RLS in check and I can lead a mostly normal life. Without Methadone I'd be dead and this is not hyperbole.