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@loribmt
He lost 26 lb since January , he is sleeping more than usually. I am worried that by the time doctor will decide on treatment he will be too weak, he is 80 years old. He had lung cancer stage one, had surgery for that. Has really bad headaches.

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Replies to "@loribmt He lost 26 lb since January , he is sleeping more than usually. I am..."

@sveta25. When you have concerns like this about your husband’s health and noticing that he’s getting weaker, sleeps more and continues to lose weight, it’s really important to talk it over with his hematologist/oncologist. Sometimes we have to be our own advocates for health and to push for answers.
CLL, while it usually develops slowly, it’s often that a person has had it for years without any symptoms. I don’t know what stage of your husband’s CLL or why his doctor is reserving treatment but you surely can ask those questions of his doctor.

Doctors tend to look for trends in blood numbers. It may be something such as, if your husband was only recently diagnosed, that there’s not enough blood results trending over time on which to base a treatment plan decision. So a few more labs may give them the trending numbers to confirm treatment needs to begin.
But no matter, I can feel your concern and honestly, if your husband doesn’t have an upcoming appointment soon for labs or a consult I’d call his doctor’s office or letter in the portal. It’s frustrating feeling as though you’re just sitting there spinning your wheels.
How often does he have labs?