← Return to HES Diagnosis - help!!

Discussion
olihoban1 avatar

HES Diagnosis - help!!

Blood Cancers & Disorders | Last Active: Dec 17, 2025 | Replies (4)

Comment receiving replies
Profile picture for vkartsona @vkartsona

@loribmt hi. Sorry to hear that you are suffering. Each case is so different. The doctors have treated my daughter with immatinib. But she was 5 years old. I do not know if that will help you but maybe you should discuss it with your doctors.

Jump to this post


Replies to "@loribmt hi. Sorry to hear that you are suffering. Each case is so different. The doctors..."

Hi @vkartsona Thank you for your concern and replying about your daughter’s experience with HES and the success she’s had with immatinib!
I think you may have misunderstood that my reply was to @olihoban1, a new member who has been diagnosed with HES. I had mentioned your name, along with a few others who have possible insights for @olihoban1 as well.
I’m just the mentor in the blood cancer support group so I do my best to bring other members together who share a similar diagnosis.
How is your daughter doing? Her diagnosis was a few years ago. Did the immatinib treatments need to be repeated or has she remained in remission?