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Does anyone have MGUS (which is a blood disorder) with symptoms?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (9)Comment receiving replies
@dmdinapoli81
two years ago I was diagnosed officially with MGUS, although in looking back at all my blood work for a few years I see it was in my blood, never discussed by MD, in 2017 at low levels. Why do most physicians treat this like a nothing disease. It is frustrating as I am sloowly developing things like protein in urine, fatigue and what I would call a little fog mentally. No one gets upset or thinks these things mater. MY oncologist did request a 24 hour urine with my next visit. But truthfully I do not feel like myself. Anyone else have these things ignored and suggestions. Or do we just keep plugging along. Also how does one differentiate between age related symptoms and MGUS symptoms that may be progressing. Thanks Chris
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@sunsetchris
It is imperative that you are your own advocate. Many doctors will account symptoms based on typical age related conditions. I was diagnosed at 38 by happenstance by a new Gastro. I have good insurance so I asked for a baseline which was have been doing since then with all my specialists I see (It doesn’t hurt). So if one says you probably have RA you can say Nope Don’t have arthritis. Although the iSTOPMM study had a large group between 40-49, I will make another post to show the gist of the study. But as a guide I tell people a full bloodwork plus a full immunoglobulin workup and 24hr urine. Depending on your m-spike/IG* level and protein level in the urine will depict the schedule. I do every 6 months for blood and year for urine.