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Profile picture for DMD81 @dmdinapoli81

I was diagnosed with IGG Kappa MGUS 6 years ago. Not only do I have tooth ache like pain in my bones but my joints hurt. When I told my hem-onc, he said ask your GP to test for arthritis, but it’s not rheumatoid arthritis. I have tried to do research to find the symptoms that those small percent have… but here is the only place I find correlations.

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Replies to "I was diagnosed with IGG Kappa MGUS 6 years ago. Not only do I have tooth..."

@dmdinapoli81
two years ago I was diagnosed officially with MGUS, although in looking back at all my blood work for a few years I see it was in my blood, never discussed by MD, in 2017 at low levels. Why do most physicians treat this like a nothing disease. It is frustrating as I am sloowly developing things like protein in urine, fatigue and what I would call a little fog mentally. No one gets upset or thinks these things mater. MY oncologist did request a 24 hour urine with my next visit. But truthfully I do not feel like myself. Anyone else have these things ignored and suggestions. Or do we just keep plugging along. Also how does one differentiate between age related symptoms and MGUS symptoms that may be progressing. Thanks Chris