Hi @olihoban1 It’s horribly lonely when you have a diagnosis that isn’t shared with many other people. I’m so happy to see you here. There are a number of members in Connect who have been diagnosed with Hypereosinophilic syndrome themselves or have loved ones/family members experiencing the side effects of this condition where too many of a specific type of white blood cell, eosinophils, exceed their normal life span. These excess cells can build up in organ tissue and cause a host of issues.

I’ve posted a links below to an HES discussion where you’ll meet members such as @vkartsona @zenk @donnahes and others.
~ Hypereosinophilic syndrome (HES)
https://connect.mayoclinic.org/discussion/hypereosinophilic-syndrome/
What types of testing have you had to determine the cause of your HES? Some possible causes can be autoimmune conditions, allergies, parasitic infections requiring a stool sample, or even genetic mutations. Have you had a bone marrow biopsy to see if there’s any underlying bone marrow condition?