@roughanne Hello. Well, we have diverticulitis in common as well as the RLS and the PV. After a colonoscopy years ago, the MD told me not even a polyp but I had diverticulitis. I asked him what to do and he said “Eat more fiber.” Subsequently, I never have had any conversation with any MD about it. I’ve always eaten a lot of fiber, and still try to.
The legs I’ve self diagnosed based on what I’ve read and I believe it is one of the results of taking HU as is the exhaustion.
I have a tendency, at my age more so, to consider my overall well being (you know, being alive and mostly well😂).
Once I got past the fear of the PV diagnosis and realized it could be managed, I felt better.
Aside from my hematologist, the Physiatrists I’ve seen at Mayo, have helped me the most. I had never before heard of this specialty. They specialize in Physical medicine and rehab, treating non-surgical conditions affecting muscles, nerves, bones and joints. In plain language I think they treat the “piece” of medicine an old fashioned GP treated by listening to all your complaints and treating what can’t be fixed with surgery. Maybe find a good one in your area? I think that would be a good place to begin. And, I think PT is part of the answer.
I hope this helps and please stay positive and keep posting.

@roughanne
I have the burning and stinging also in my shin bones from the top of my feet to my knees. I honestly think it’s the PV not the meds. Looking back, I had these symptoms before my diagnosis so I hadn’t begun the hydroxyurea yet. It comes and goes and I try to pretend it’s not there. I too have Diverticulitis! Maybe they should do a study? Three people who just had a conversation with PV is a big coincidence. Good luck to all of us..

@roughanne
My GP gave me a low dose of Gabapentin three months ago. I had major leg cramps for years waking me up hourly! I've only had cramps 3 nights!! So far so good. I tried everything.