anyone not on meds for Rheumatoid arthritis??

Posted by tisme @tisme, Nov 28 5:00am

I am now not on meds due to issues , seeing the rheumatologist next week after I took myself off the meds. See what she says.

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tisme | @tisme | Dec 1 1:50pm

In reply to @nodreams "@susanlf" + (show)

@nodreams the jaw pain is the worst , the dang dentist that made the splint that was wrong ( I was told ages ago there is arthritis in the jaw ,) started it , after all the years of me having tmj and little problems with it now ............ the pain. and on top of that all the other issues with arthritis worst thing is there is nothing I can do about that dentist.

tisme | @tisme | Dec 2 1:54pm

the rheumatologist yesterday sorta made me feel guilty about not being on sulfa drugs ( I am allergic to sulfa ) re the hydroxychloroquine he wants me to have have some more eye tests ( wonder what they will cost) if my eyes are ok I can go back on the hydroxy. Will be another 6 months before I can see him again hes fully booked I have inflammatory arthritis (I think he called it ) which includes rheumatoid, I also have osteo in my knees ( explains why I cant kneel on them)

Sue, Volunteer Mentor | @sueinmn | Dec 2 5:53pm

In reply to @tisme "the rheumatologist yesterday sorta made me feel guilty about not being on sulfa drugs ( I..." + (show)

@tisme Hmm...that seems odd. There are many meds out there for RA other than sulfasalazine, I wonder why he didn't suggest options.

tisme | @tisme | Dec 2 9:31pm

In reply to @sueinmn "@tisme Hmm...that seems odd. There are many meds out there for RA other than sulfasalazine, I..." + (show)

@sueinmn if the hydroxy is no good there are other drugs ( new ones ) but they are expensive. he said

Sue, Volunteer Mentor | @sueinmn | Dec 3 12:06am

In reply to @tisme "@sueinmn if the hydroxy is no good there are other drugs ( new ones ) but..." + (show)

@tisme My rheumatologist told me there are over one dozen "older" drugs out there in addition to the high cost injectable ones. We are working our way through to find the best fit for me. It is very individual, and also depends on what else your body has thrown at you, and what other meds you take.
Like you, sulfas are a no go for me, and I also have some heart meds and Bronchiectasis and asthma in my lungs...

tisme | @tisme | Dec 3 12:40am

the doc I saw I wasnt fond of but I dont get to choose as the government pays for me to see specialists.

jw9 | @jw9 | Dec 3 4:16pm

In reply to @tarmansbks "@jw9 Thank you. I recently read three books by Atul Gawande describing his years as a..." + (show)

@tarmansbks
Hello, I really appreciate your post! I love to read and one of my favorite subjects is any kind of applied philosophy, as in this case with medicine and mortality. I wrote down the info and look forward to finding these books. Thank you for adding a positive dimension to our lives with chronic disabling illness.

tarmansbks | @tarmansbks | Dec 3 5:22pm

In reply to @jw9 "@tarmansbks Hello, I really appreciate your post! I love to read and one of my favorite..." + (show)

@jw9 Thank you. I find the writing style to be very clear and not distressing despite some of the examples. Helps to understand the other side of the examining table and what emotions doctors feel.