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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: 18 hours ago | Replies (146)

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Profile picture for tracypage @tracypage

@m118 I am there with you. I am positive for the MYD88 gene and am starting to have symptoms but the bone marrow infiltration was still fairly low last summer. The neuropathy part sucks though…. sleeping through the night has not been easy.

And I still can’t say macroglobulinemia even though the oncologist said it very slowly for me. Or hypogammaglobulinemia. Seriously, can’t they find easier words?

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Replies to "@m118 I am there with you. I am positive for the MYD88 gene and am starting..."

@tracypage
I hear you! It took me a month to learn “myelofibrosis.” Dont know if I’ll ever get WM down. 😄