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Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (135)Comment receiving replies
@tracypage As I said in my recent long reply, exercises alone will not do much if you do not change what you are eating and a few other things. It is a multimodal approach if you seriously want to address the symptoms, grow new nerves, and slow progression. Cymbalta is ONLY an antidepressant, and sometimes it helps MASK the pain of neuropathy, but that does NOTHING to get to the cause, and your nerves from continuing to be killed, and progression of the damage and eventual death of your nerves!
It's not much better than Lyrica or gabapentin, which any honest neurologist will tell you does not prevent more nerve damage or lower inflammation in the body!
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@circawdm
And I hear you on exercise…. PT has been extremely helpful. They have also taught me exercises to strip the nerve pain which does give some momentary relief.
I am a very compliant patient. I am also almost off the cymbalta, 3 more weeks. The neurologist recommended 120mg and I am so happy we did not continue escalating to that but I am not sure what to do next. I am back at oncology in February and have another pet scan so I guess this is where I am for now. Managing it the best I can. This is by far my worst symptom at this point, although my paraproteins have been dropping too and they seem to be watching me closely. They said last summer it was IgM MM but now I am back at Intermediate risk MGUS on WW. What they thought was a lesion was a healing broken shoulder I didn’t know I had broken. It’s been an interesting few months.