Hello @mam4252, welcome to Connect. I think that is one of Mayo Clinic's strong points - patient centered health care. Mayo Clinic as a whole is a patient centered health system so they do referrals to other specialists when/as needed. I think they are really unique in the health care industry. Here's some information on their care:

The Mayo Clinic Model of Care is “carved in stone” at Heritage Hall
— http://history.mayoclinic.org/toolkit/mayo-clinic-model-of-care.php

My experience as a patient at the Mayo Clinic Rochester Campus has opened my eyes to how good of a job they really do looking at the whole picture of a patients health. I had swelling in my right leg and I was able to get a referral to Rochester Mayo Clinic. They determined I had lymphedema but at the same time gave me a referral to orthopedics for my knee and also setup an appointment for me with sleep medicine where it was determined that I also have obstructive sleep apnea. I am scheduled for a knee replacement due to bone on bone advanced degenerative arthritis in my right knee when I me with orthopedics last year. They did have me try a steroid shot and physical therapy first but that's a good thing.

If you would like get a second opinion from Mayo Clinic, you can find the contact information for
the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

@mam4252 what has been your biggest challenge helping your daughter?

Go! I wish I had a Mayo near me...