← Return to Migraines and tingling in the body
DiscussionMigraines and tingling in the body
Headache & Migraine | Last Active: Dec 8 7:44pm | Replies (12)Comment receiving replies
Replies to "@fourleaf Can you tell me more about "If I try to read or work on computer..."
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@erickthompson
I think my burning sensation comes from "focusing" / trying to understand what I read or what is on the computer. I find I need to make notes so I know what I accomplished and where I left off (hand written or using computer Word processor).
My neurologist found I had a very tense neck (causing tension headaches) and gave referral to Physical Therapy - Dry Needling. After first session, no headaches for the first time in years. The relief lasted 3-4 hours. As the weekly session went on, the relief increased. After 20 weekly session, I now go monthly. After hearing the positive result, my neurologist prescribed Baclofen 10mg 3x/ day (muscle relaxer). This was one piece of many to my issue/ symptom puzzle.
Neurologist also has prescribed Vyepti infusions (once every 3 months). After first infusions, head pain level of 8 down to 4, which increased to 6 after 30 days. The second infusion was positive just not as much as first. Note, neurologist had prescribed two Migraine Infusions earlier. They were very strong but didn't help.
I showed my neurologist my research and she referred to Allergy and Immunology. I started getting a gut feeling that my root cause was "cell level".
Some of my research - check out to see if it's related to you.
I found Akiko Iwasaki, she is the Head of Yale University - School of Medicine - Immunology.
https://medicine.yale.edu/profile/akiko-iwasaki/ (wealth of info, also check out her Lab for current projects)
Paper #1 -Immune markers of post-vaccination syndrome indicate future research directions https://news.yale.edu/2025/02/19/immune-markers-post-vaccination-syndrome-indicate-future-research-directions (many links inside this paper)
Also, Jarred Younger PhD – University of Alabama at Birmingham
(Check out his other videos for areas of interest)
066 - New paper: The top treatments for ME/CFS and Long-COVID
Paper #2 - Patient-reported treatment outcomes in ME/CFS and long COVID
https://pubmed.ncbi.nlm.nih.gov/40627388/
I recently found Polybio.
“The Long COVID Research Consortium has established a comprehensive research program on Long COVID disease mechanisms, with a focus on viral reservoir. The program includes scientists and clinicians from institutions including Harvard Medical School, University of California San Francisco, the J. Craig Venter Institute, Johns Hopkins, University of Pennsylvania, the Icahn School of Medicine at Mount Sinai, Cardiff University and Yale University.”
They have a "consortium-project-explorer" (Screenshot below c-p-e 1), click on body part and it shows links where you can click to see full study.
https://polybio.org/consortium-project-explorer/
Note: First time - walks thru the Intro to Polybio and "how to use" explorer, later you can Skip Intro
It's been a journey, Best wishes on your journey
🍀