← Return to Amy long-term survivors in our group?

Discussion
debdeb1 avatar

Amy long-term survivors in our group?

Breast Cancer | Last Active: 5 days ago | Replies (39)

Comment receiving replies
Profile picture for aubreybill @aubreybill

Thank you @marshgirl24 very interesting post. Yes I had very early ILC about 25 years ago - estrogen positive. Treated with double mastectomy and 5 years of tamoxifen. Yes very slow moving - just last year, 33 years later had small lump under my arm that was stage 3/4 estrogen positive breast cancer in my lymph node - declined chemo since 72 (very healthy other than being old) so they treated me with Anastrozole to shrink the tumors which was successful. Had surgery they remove 27 nodes 11 where cancerous, then was treated with 16 rounds radiation for mop up. Oncologist wanted me on Verzenio to prevent spread - tried for month could not tolerate side effects. My oncologists are of the opinion my cancer will return - my ALC are under 1000 so my own immunity is low - I did take a Zometa infusion in AUG to help stop the spread into my bones & this will need repeating every 6 months. It is a "wait and see" attitude from oncology - I am pressing my doctors to address my immunity - convinced I would be a good fit for the new BIO SHIELD protocol but of course "traditional" oncology is resistant since FDA not approved for breast cancer yet. So for now I am still taking Anastrozole and every 6 month Zometa infusions - waiting for a return of this nasty cancer someplace else in my body - every headache, bone ache, tummy ache is suspect - hate living like this - feels hopeless unless I can jump start my own cancer fighting T cells. Fingers crossed the immunity protocol will get approved for all cancer patients.

Jump to this post


Replies to "Thank you @marshgirl24 very interesting post. Yes I had very early ILC about 25 years ago..."

@aubreybill thank you for sharing this & sorry for what you're going through. I am recently diagnosed stage 1 ILC. Also 72. Lumpectomy & undergoing 5 days of radiation. Bear with me if this is a ridiculous question, but is there any chance your more recent cancer is unrelated to the first? Or is it definitely a recurrance? I'm still learning all the ends & outs. Fingers crossed that you stay cancer-free from now on! Hang in there & best wishes to you!