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Has anyone experienced repeated infections while taking SKYRIZI
Autoimmune Diseases | Last Active: Dec 12 6:42am | Replies (51)Comment receiving replies
@beachesanddreams
No, I didn't go back on Skyrizi due to increased joint inflammation, exact opposite of what I thought it would help with, but I started just after it was approved for Crohn's, it wasn't divided into separate disease considerations yet, now it's listed as good for Colitis, not as good for Crohn's!
Also, I had to go off all biologics for a year before 1st surgery on hip, a years worth of prep and still got infection 😱. You'll need to do s lot of your own research for just about everything , preferably before you actually start anything and as far as gatherings go, your life will need to change, it is hard, not gonna lie, but those that really care for you will adjust and keep your welfare in mind ! I joined some support groups and that has helped a lot, being able to see what others say, tips, just socialization I a different form! Well wishes!
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@bbmayo The socialization part…it IS a struggle, you are so right. It’s hard for women to ask for “accommodations” anyway, and that compounds the sadness of the whole thing.
I have two groups of friends who are so understanding. Another group, well, I’m about to find out.
My family has always treated Covid like it was no big deal. There’s really no reasoning there.
As for the asking questions prior to starting a new medication…I am kicking myself for not asking a lot more about my psoriatic arthritis diagnosis and getting a second opinion.
First rheumatologist beseeched that every day without treatment it, I was doing damage to my joints, which would affect me into old age. That was terrifying.
Second rheumatologist told me based on X-rays she took that there “is no evidence of prior joint inflammation.” Which doesn’t rule out inflammatory arthritis, she said, BUT WHAT DOES THAT MEAN?!
That’s why I’d like to come off the SKYRIZI. Let’s get to the bottom of this, shall we?
Your replies have validated everything I’m feeling about my current treatment and the mental/emotional difficulties surrounding it. Thank you for this. 🙏🏻 I’ll continue to fiercely advocate for myself, ask questions, and do all I can to stay safe and sane.
Maybe it won’t be forever. Who knows, right?