← Return to Chronic GVHD at 11 months post stem cell transplant: Discouraged

Discussion
deb913 avatar

Chronic GVHD at 11 months post stem cell transplant: Discouraged

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 10 2:12pm | Replies (24)
Comment receiving replies
Profile picture for marylou329 @marylou329

I will be baking up a storm. 😅🤣.
I will keep you posted. Its like whack a mole.😆

Jump to this post

Replies to "I will be baking up a storm. 😅🤣. I will keep you posted. Its like whack..."
Lori, Volunteer Mentor | @loribmt | Dec 3, 2025

@marylou329 You go gurl!! Use your steroid power for good! 😂

VIEW AND REPLY
g4c | @g4c | Dec 4, 2025

@marylou329
Hello, I would just like to add that I was on prednisone for months combating skin GVHD, as high as 130mg a day. One important thing that my doctor told me was to keep exercising my legs so I climbed many flights of steps everyday. The reason is that prednisone can cause leg muscle loss and weakness and then if you lose mobility other body systems start to decline. This is not to scare you just food for thought, exercise those legs while you are baking up a storm 😊. Don’t worry, this too shall pass.

VIEW AND REPLY