Anyone out there with Thymoma/Thymic Carcinoma?

I’m having surgery 11/4 the surgeon hasn’t specified how he will go in.

@samsammie, all the best with your upcoming surgery. Did you learn more about how the surgery will be done and how to prepare?

Unfortunately the surgery had to be postponed for a month while I am treated for MG.

I just joined connect today. I have been diagnosed with Thymoma. Mayo believes it is stage three but there have been issues properly staging the tumor due to how much necrosis there is. My anxiety is just through the roof. I have never been to so many doctor appointments in my life. I am currently 44yrs old. My tumor is currently not operable due to how close it is to my aortic arch (I think that is what the surgeon said). They want to try and shrink it with chemotherapy and the idea terrifies me. Anyone here done chemo? I am also soooo scared of the eventual sternotomy. How did everyone stay positive and not spiral?

@judyjohnson2025

I’m so sorry to hear about your diagnosis! My heart goes out to you 💖

I found my strength and resilience through hope, positivity, acceptance and action.

Embrace the journey, and take it one step at a time.

@judyjohnson2025, I can understand how worried you are. You are in good hands at Mayo Clinic.

It's not uncommon to have chemo before surgery to help shrink the tumor and make it easier to get the cancer out with clear margins (meaning getting all the tumor out.)

When you hear the words chemo, I can imagine your mind races with all the stories of side effects. Keep in mind that there are many different types of chemo, some have few side effects. I find knowledge is power. Do you know what type of chemo you will be getting, the name of the drug? Did the nurse or doctor review the side effects with you?

Hi Colleen. I am doing three at one time: Cyclophosphamide, Doxorubicin, and Cisplatin in 21 day cycles. I got some information on side effects but felt frustrated as it seems they don't know alot until you get your first dose.