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I am receiving gemdoce treatment for noninvasive high grade bladder cancer, as well.

Mine is high grade due to the number of noninvasive spots (I waited too long to see about those syptoms..).

First I had the six weekly treatments and now have gone into the monthly doses, having received six of those and now it is time in December for a cystoscopy - very shortly! So far, every cystoscopy has been clear. My reward for being clear after the 6 weeks of gemdoce was another year of monthly treatments 😉

I know that the possibility is two years of the monthly treatments, (the remaining six months plus another year), but my physician seems to dole out the information about what is next when he does the cystoscopies.
I will ask what the choices might be. I am self-employed and can manage my schedule, but I still need information. That part has been tough.

So far, I have been clear at each cystoscopy - the one prior to beginning gemdoce and the one after the six weekly treatments. Now it is time to see what has happened after the six once/month treatments. The nice thing about this is that when I have the cystcopy, I don't have the treatment, so i get December off. That means feeling better for the holidays. I find that my energy is lower than normal all the time, and my immune system is weak - if I go out in a crowd, I seem to catch something, so I wear a mask and stay home as much as possible.

The side effects are worse in the days right after the treatment, and vary each time.

What has helped the most is that I am involved on a couple of boards of community service organizations and that keeps me in touch with others, even if I cannot attend everything. So many of them have had cancer and have given me encouragement and information about their own journeys.

I suggest that at whatever level you are comfortable, you don't try to keep it from everyone. You may find as I have that people are helpful and understanding about your reduced energy, etc.

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Replies to "I am receiving gemdoce treatment for noninvasive high grade bladder cancer, as well. Mine is high..."

@bethcamp
Dear bethcamp, thankyou for your information. Similar situation with myself. Question: Did you have to go down the BCG treatment road before your current treatment with Gem/Doc?