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Hello @cash298 / Teri,
Welcome to Mayo Clinic Connect. I am sorry it took awhile to welcome you.
That gradient you have is pretty impressive.
But I do not mean that in a good way!
HCM is such a weird condition. There are so many strange symptoms and issues. Sometimes it takes a long time to diagnosis us correctly. I did in my case. I was diagnosed with four or five different heart diseases, none of which I had.
I had two full-on Thanksgiving dinners this year. I was absolutely miserable after each one. I simply ate too much.
Sure. I knew better. I had good intentions...It just tasted so good I couldn't find my "OFF" button soon enough.
Boy. Did I suffered for hours afterwards. This is a pretty common symptom in our little group.
March seems like a long time to wait, but then time does go by so fast. I'm super happy to hear you will be getting a second opinion from a Center of Excellence (COE) at the Cleveland Clinic.
In the meantime, while you wait, have you taken it upon yourself to learn as much as you can about what is living inside your chest? Here are two links to get you started in case you haven't already:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
https://www.4hcm.org/
Are you otherwise healthy? Has your HCM limited you in other ways?
Replies to "Hello @cash298 / Teri, Welcome to Mayo Clinic Connect. I am sorry it took awhile to..."
@karukgirl I don't really have any other health issues, but I am and have been almost completed knocked out by these symptoms for over a year now, I am guessing they were there before that and I slowly became used to them until they started getting this bad, but with the gradient of 214 I cant believe they aren't worse. in the last 6 months I have barely felt like getting out of bed. But I do, I work 40 hours a week and continue to push through.
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@karukgirl Thank you for the links, I love learning esp when it involves my heart.... I have suffered horrible things for over a year, and so thankful that I have finally gotten a diagnosis that makes sense to me of why all the weird symptoms (I am a DNP so of course it was driving me crazy, and I had never heard of this). Luckily my Boss is a national nephrologist and knew about it and insisted I make the appointment with Cleveland. I just took the heart monitor off, and I started Camzyos on Monday night. Here's the weird thing, even though it isnt supposed to work right away, I felt like a new person the very next day after starting this strange new drug. Its very very weird, I am waiting for the symptoms to start back up any minute though. Have you ever heard of this?