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Prescribed Tymlos after Evenity
I completed a one year course of Evenity in September 2023. I switched endocrinologists afterwards, and he prescribed Fosamax after a brief discussion. I contacted the doctor who had prescribed Evenity, and he advised that I come to the office. He prescribed Tymlos, which I have now been on for 8 months. I changed my medical insurance to Medicare, and the doctor who prescribed both Evenity and Tymlos doesn't take it. I went back to the doctor who prescribed Fosamax after Evenity and he freaked out and said Tymlos is NEVER given after Evenity. His colleague in the same office concurred. He then ordered Prolia. I contacted the manufacturers of both Evenity and Tymlos, and they were very considerate and informed me that to their knowledge, there have been no studies about using Tymlos after Evenity. I am currently on a wait list for a new endocrinologist. I have a history of vertebral fractures and I need dental work, and I don't want to be on Prolia. I can finish the remaining months of Tymlos, or switch to Fosamax and wait and see what the new endocrinologist recommends. Needless to say, the situation is not ideal as I'm winging it. That being said, I know that treatment for osteoporosis is complicated and we patients have to be our own advocates and do a lot of research. I'm not opposed to that, but I'm not finding any information for protocols that have a progression of Evenity to Tymlos and then? If anyone has any information to share, I'd really appreciate it.
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Thx…did you do anything special? Sure appreciate your input and experience with Tymlos.
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2 Reactions@osteopatient2026 Thank you for the kind words. I think the best thing I did was joining this community. I have learned so much and have felt so supported. I also learned that I prefer to focus on the positive and eliminate stress as much as possible. Most people come here because they are seeking answers for issues they experience. There's a whole other side to explore, which is to also search for positive experiences people have had. That feels more balanced to me. It's human nature to try to anticipate what could go wrong, but it's also possible to anticipate what could go right. I hope that makes sense!
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4 Reactions@osteopatient2026
No side effects, but I started with small dose (2 clicks);
and worked my way up to full dose over several weeks
You are so right that we have to be our own advocates!!! I have gained alot of knowledge and insight from reading this blog, the AlgaeCal Community page and the individual drug support groups (ie. Fosamax, Evenity, Reclast and Tymlyos, Prolia) on Facebook. I also found a ton of info in Kieth McCormicks book "Great Bones". Hope this helps some. Best wishes on your bone journey.
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1 Reaction@mcallister1002 Thank you - those are invaluable resources! I'm so glad you've taken the initiative to advocate for yourself and are finding it worthwhile. Best wishes to you moving forward!
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1 Reaction@sunny65 hi I'm on evenity months 10. Need to be on bone builder yet because I had to have fusion 7 months ago. Don't want to be without a real bone builder in my next year of healing tobacco full fusion success. So I want teripartide does any one know of any endocrinologist who made do that for me. I have multiple other conditions and lots of teeth not in my mouth whi h put me at greater risk from bisphosphenates fir jaw necrosis and atypical fractures hips are lower than spine now and need teripartide. Got 3 months till end jan to figure this out. Mayo clinic wants reclast iv im scared to death can't get it out body once in there. Top many severe risks with that in my fusion new state I feel. I am in no pain now after fusion AND DONT WANT ANY RISK TO PAIN THATS NOT REVERSIBLE. LONG TERM PAINS ETC IF I GET FROM IV BISPH THEY ARENT LEAVING THEN IM IN PAIN REST OF MY LIFE. NO THANKS. DONT WANT A LIFE OF PAIN PILLS TO RUIN KIDNEY AND LIVER THAT DO NOT HELP. I DONT CARE IF I HAVE TO DRIVE TO FIND HIM OR TELEHEALTH VISIT. ANYONE NO PF ONE WHO DO THIS FOR ME. WTMRISTS ARE STILL - 2.2 AFTER 11 MONRHS EVENITY. HELP PLEASE IM RUNNING OUT TIME AFTER LAST SHOT EVENITY JAN. ONLY HAVE MONTH THEN NEED START SOMETHING ELSE DONT WANT BISPHOS. I want goid solid new bone for 2 more years then ill have to do bisphos.
@sunny65 all these dr worry is oh your ins wont cover. DOBTHEY NOT KNOW THAT THEY HAVE THE POWER TO TRY TO GET ANOTHER TREATMENT NOT SO WELL KNOWN FOR US BUT THEY HAVE TO WRITE INS OR FAX OR CALL THEN TO REQUEST OTHER COVERAGE BECAUSE 1. WE ARE STILL HIGH RISK AND TELL THEM WHY. 2. ONE TREATMENT DIES NOT FIT ALL AND EVERYONE HAS DIFFERENT CONDITIONS THAT CAN PUT US AT MORE RISK TO A DRUGS SIDE EFFECTS AND THEY NEED TO RECOGNIZE THAT. THEY CANT PUT US ALL IN SAME BOX AND JUST COOKIE CUTTER OUR TREATMENT TO SAME ALL THE TIME BECAUSE THEY ARE TOO LAZY TO DO SOME LEG WIRK TO GET SOMETHING ELSE APPROVED. THATS WHAT PRIOR AUTHORIZATION IS FIR. THEY ARE JUST LAZY. IGNORE STUDIES OF REAL WORLD AFTER MARKET STUDIES SAYING NECROSIS OF JAW IS MORE PREVALENT IN REAL WORLD FINNISH STUDY ON PUB MED. UP TO 6 TIMES HIGHER IN LOW DOSE BISPH AS RECKAST AND ALENDRONATE THAN THEY SAY IN FURST CLINICAL TRIAL APPROVAL FDA ONE. AND GOES FOR ATYPICAL FRACTURE AND SEVERE BONE JOINT BACK PAINS LONG TERM TOO. MORE RISK THAN SAY. ALSO I READ AMERICAN DENTAL ASSOC SAYS DR IGNORE THEM. WHEN THEY SAY RISK TO JAW IS AKSO MORE IN PATIRNTS WHO HAVE HAD LOT OF TEETH PULLED; ME 5 OR 6 IN LIFETIME MORE RISK NOT JUST RECENT PULLS BECAUSE MORE JAWBONE IS EMPTY OF TEETH MORE VULNERABLE. IM SCARED. I NEED ENDO OR RHEUMTOLOGIST TO GIVE ME CHANCE ON TERIPARTIDE 2 TEARS IT WILL BRING MY BMD UP IN THOSE 2 YEARS MAY INITIALLY FALL A BIT IN ANABOLIC WINDOW BUT AFTER MORE BISPH IT WILL BE ONLY HALF. HELP ANYONE.
@sunny65 where who can give me teripartide after evenity? Im desperate to find someone somewhere by end jan or first feb. I live in nw Iowa right now im at mayo Rochester mn. They won't do it.
@awfultruth I feel its has a better chance to work better than any antiresorptive out there with exception of prolia but I have too many of their side effects listed to want to make them worse by trying that one until I have 1 foot in grave and be 87 years old. Im only 69. Too much life I want to be pain free to risk bisphos YET. WANT BONES STRONG THEY CAN POSSIBLY BE. WRISTS STILL -2.2 ON ALMOST YEAR OF EVENITY. I DONT CALL THAT HOID. HIP IMPROVED ONLY -0.4 TO - 0 3 . NOT GOOD ENOUGH FOR ME. I too got
Self pay dexa. I have bone on bone hips no cartilage on top poor bone score. Scared as he'll I am. Bout screws loose from hardware and jaw and hip frx from bisph.
@hollygs who if I may ask is your new metabolic bone specialist? Im looking for one ASAP to see if I can do teripartide after evenity. It's an antiresorptive fir last 7 months anyway so if I wait one half then do teripartide anabolic window should be gone and no problem. Wrist on dexa bad -2.2 [
On 11 months of evenity. Not hoid in my book hips improved tenth of a point. -0.4 TO - 0.3 AND ALL THEVARTHRUTIS I HAVEVAND BONE SPURS STARTINF OF RETROLISTHESIS SLIPPED DISCS IN L1 L2 L3 AND C5 C6 AND C6 AND C7. AND T12 TO L1. IM IN TROUBLE FOR FUTURE AND NEED STRONG AS BONES AS I CAN GET. HIPS ALSO BOTH NO CARTILAGE LEFT. IM ONLY 69 NOT READY FOR ALL THIS DEBILITATING STIFF. I WANT TO GO TO FLORIDA SECOND HONEYMOON AND CAMPING AND FISHING WITHOUT WIRRY OF PAIN AND JAW AND BROKEN ATYPICAL FRX FROM BISPHOS YET. NEED 2 YEARS TERIPARTIDE INS COVERS NOW NOT LIKE LAST YEAR OF MY FUSION IN MAY 2025.. ANYONE ONE KNOW OF PHYSICIAN IN IOWA OR MINN OR SOUTH DAKOTA OR NEBRASKA THAT WOULD START ME ON TERIPARTIDE . HIGH RISK CUZ RODS SCREWS FROM FUSION AND LOW BONE STATUS FAILED TO KEEP GAINS ON FOSAMAX 10 YEARS PAST TOO PLUS ALL OTHER RISKS OF BISPHOS.help if i know of someone