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Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: May 17 2:03pm | Replies (284)Comment receiving replies
Thank you so much for your quick response. I am going to see a neurologist next week. I saw one when the symptoms very first started but all she did was rule out MS and send me no my way. It's not that I want the tests to show something wrong but there is something wrong. This is not in my head. I know something is wrong with the nerves. Maybe it's not advanced enough to show up on a test, although the symptoms sure do feel advanced. I was shocked that the EMG didn't show anything significant. Pretty sure my insurance won't cover a Mayo doc, but at this point I don't care if I pay out of pocket. I don't have a lot of money but I could try to get enough to cover it. Can I ask, in your experience do you think the muscle cramping/tightness, sharp pains and twitching be from SFN. I know you're not a doctor but you do have SFN, Right?
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Hi @bethb94, I have idiopathic small fiber peripheral neuropathy but have never felt pain only numbness with mine. I wrote a post with my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.
It's not uncommon to have multiple symptoms and other autoimmune diseases with SFN. Your symptoms sound a little like restless leg syndrome - https://www.mayoclinic.org/diseases-conditions/restless-legs-syndrome/symptoms-causes/syc-20377168. There is a discussion here on Connect that you might want to read through:
Groups > Brain & Nervous System > Restless Leg
-- https://connect.mayoclinic.org/discussion/restless-leg/
Does the muscle cramping and tightness occur at night? Also, do you stay hydrated by drinking a lot of water? The reason I ask is some people will get severe leg cramps when they don't drink enough water.
John