Not possible to tolerate these legs anymore. Any suggestions, treatment?
I see you got no replies. My RLS drives me up the wall. It statrs about the time when it's bedtime. Sometimes it lasts alnight. Doctors? All they know to do is shove the nerve, anxiety and anti-depressants down you. Maybe we will both get some help on this site. I pray we do.
Thank u lovinJesus. Yeah it IS exactly as u described, it starts at the bedtime and never finishes up to the morning which is work time and u still need to sleep. Do u use massagers or pain killers? How do u live with these legs?
I don't mean to underestimate your pain -- but would 3 extra strength Tylenol taken at bedtime help you? It does help me. I wish you all kinds of luck. Plus, you might try Magnesium oil rubbed on your legs. That seemsto help some people.
I've been on LOTS of sites gathering info and I see now that you must avoid certain foods, such as SUGAR!! I believe that ,in many cases, a person's brain lacks an appropriate amt of dopamine, so foods that aid in giving this to the brain, PLUS exercise (I bought an exercise bike) seem to help. Certain exercises that stretch the backs of the legs also help. Pain pills don't help as it's NOT a pain that I have......it's the sensations in the legs that make being still horrible! Any thoughts on what I have written here?
Tonight i tolerated the worst pain i had experienced in last year. I hate traveling as it makes this pain to be more sever.
Obviously, if you have not seen a doctor aqbout this you need to. 2 very helpful web sites are http://www.rlshelp.org. Go to the treatment page. See the emds to use and to avoid, plus foods also. In the US there is Mirapex, Requip, plus an extended release form of each with XR after the name. Also, there are anticonvulsants called Neurontin that help some people, especally if you have pain. also, the Neupro patch was approved for use finally. I know this web site has all of this info too. Get curious, look up information; you will find that unless you get a good doctor who has treated RLS patients before, regular GP's may not know what drugs to prescribe. A neurologist is agood fit, since this is neurological condition, or a sleep specialist. You need all the info you can get when you first see a doctor. the more you know, the more you are in control. There is no cure, but lots of help in the right places. Online support groups are great, and I manage several and have for the last 15 yrs. I would not still be on this earth if it were not for my RLS groups.
Crazy as this might sound...slowed bowel movements press on those nerves (pain med's slow your system way, way down) My gastro doctor had me start using MIRALAX (over the counter, but you can get prescrips also) twice a day. Once that started working as I thought it was, but it apparently wasn't my legs at night started hurting. Also, low back (need a back MRI) from a bone fracture can cause that. Two things to check out before trying more serious med's. Give it two weeks on the Miralax and see if you notice anything. Can't hurt to try it. It worked for us. We swear by the stuff now.
Sorry MEANT LEGS STOPPED HURTING AT NIGHT.
Requip ,generic name ropineral. I have it BAD, BAD BAD, This works