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hamzehlou

Restless Leg

Posted by @hamzehlou in Brain & Nervous System, Jul 8, 2012

Not possible to tolerate these legs anymore. Any suggestions, treatment?

Tags: sleep problems

Stephmarta and lovinJesus like this
lovinjesus

Posted by @lovinjesus, Jul 8, 2012

I see you got no replies. My RLS drives me up the wall. It statrs about the time when it's bedtime. Sometimes it lasts alnight. Doctors? All they know to do is shove the nerve, anxiety and anti-depressants down you. Maybe we will both get some help on this site. I pray we do.

Hamzehlou likes this
chesterlove

Posted by @chesterlove, Oct 15, 2012

Hi I don't know if anyone is still contributing to this site but I take Norco that has Tylenol in it for my RLS and it is a life saver. When I was given Norco without the Tylenol it did not work as well at all. My RLS is so bad that I get it in my arms and hands as well as my legs! I get it in the middle of the night, early in the morning, or even in the middle of the day. When I got it in the daytime, I didn't realize what it was because it felt different when I was awake and moving around. It took me forever to figure it out. I would lose my mind if I didn't have my Norco. I have tried the meds for RLS and they all make me very sick to my stomach! I have suffered with this since I was a child.

olgabeck

Posted by @olgabeck, Oct 30, 2012

Is this a prescription drug? I am having a very hard time with RLS and am ready to try something new. I have used Mirapex and Requip

jennybell

Posted by @jennybell, Oct 30, 2012

Norco is a narcotic medication. another name for it is lortab. There is a medication called neurontin that is a prescription that can help. Thats what I take at bedtime. It helps a lot.

chesterlove

Posted by @chesterlove, Oct 31, 2012

I have taken Neurontin for another problem and it did nothing to help with my RLS. I wouldn't waste my time with that medication!

jennybell

Posted by @jennybell, Oct 31, 2012

What works for some doesn't always work for others. It was just a suggestion.

chesterlove

Posted by @chesterlove, Nov 2, 2012

Very true jennybell!

hamzehlou

Posted by @hamzehlou, Jul 8, 2012

Thank u lovinJesus. Yeah it IS exactly as u described, it starts at the bedtime and never finishes up to the morning which is work time and u still need to sleep. Do u use massagers or pain killers? How do u live with these legs?  

molly likes this
lovinjesus

Posted by @lovinjesus, Jul 8, 2012

Hamzehlou, I have a Chinese wooden roller (muscle relax roller) that I message my legs with before I go to bed but it does not always work. I use a very srtong muscle rub (anything that burns) and the burning over whelms the crawling but not the cramps. I was told to take 2 Magnesium tablets before I go to bed but I see no difference yet. I tried the restless Leg pellets that you melt under your tongue, you can get them at CVS, they didn't help but maybe they would help you. I was told to walk or bicycle but have not done that yet. It's miserable, isn't it! I kick, toos and turn and it is even in my arms. My husband can't sleep so I get up and walk a while then I try to relax in a recliner and began messaging again. How do I live with these legs? Miserably is all I can say. Wish they had a cure.

Hamzehlou likes this
hamzehlou

Posted by @hamzehlou, Jul 8, 2012

Lovinjesus, when I was reading ur kind comment I just felt i ve been asked the same question and I am explaining how my life looks like. You know my situation even gets worse than what u said when i travel. In fact i am a frequent traveller coz of my job which makes life more miserable than being at home using different machines and some times drugs to be able to rest some hours like others at night.
Btw u have got nice id that i beleive ur love to jesus will help u go on with this type of living.

lovinjesus

Posted by @lovinjesus, Jul 9, 2012

Thank you so much for your kind reply Hamzehlou. Yes, we have to lean on Him, He said we can do all things through Christ which strentheth us. Smiles to you! 🙂

lovinjesus

Posted by @lovinjesus, Jul 11, 2012

This is the muscle roller I eoll on the calves of my legs before I go to bed. Sometimes it help but it always comes back later at night.
http://www.amazon.com/dp/B0009MGLIE/ref=asc_df_B0009MGLIE2088093?smid=A1FY8UWLDFX952&tag=dealtmp710696 Only 6.00. I got mine many years ago at a All natural health food store

grandambj

Posted by @grandambj, Jul 8, 2012

I had the same symptons and my doctor diagnosed restless leg syndorme. I did all the same things you do plus I had a very hot bath around 2 or 3 AM every night. I usually got about 4 to 6 hours of sleep. He finally persuaded me to try a medication normally prescibed for Parkinsons dease. I take only .25 mg of Sandoz-Pramipexole and I am basically syptom free. It is heavenly to wake up and feel like I slept. I am in Canada so don't know if this medication is available where you are, but if si give it a try.

hamzehlou

Posted by @hamzehlou, Jul 9, 2012

Thank you. I will surely try it. You mean you have no pain in ur legs right now, esp at bedtime?! How old are u? And any side effects this medication has brought for u?how long should i take it? Thank u for ur patience to reply.

lovinjesus

Posted by @lovinjesus, Jul 9, 2012

Oh wow, I will see if my dr will prescribe that for me. Thanks Grand

lovinjesus

Posted by @lovinjesus, Jul 28, 2012

Ginkgo Biloba

Ginkgo is known as the memory herb. It increases blood flow to the brain and strengthens cell membranes. It is also an antioxidant, combating free radical damage in the body. Ginkgo is useful in treating RLS as it promotes nerve transmissions and tones the blood vessels throughout the body. It is considered a natural antidepressant and helps alleviate tension and anxiety. It is widely used in conventional medicine throughout Europe and has no known side effects. Ginkgo is most commonly taken in capsule form, although it is also available in a tincture.

Read more: Herbal Cure for RLS | eHow.com http://www.ehow.com/about_5505827_herbal-cure-rls.html#ixzz21stpdMv5

bettyann

Posted by @bettyann, Jul 10, 2012

Hi there,
I don't mean to underestimate your pain -- but would 3 extra strength Tylenol taken at bedtime help you? It does help me. I wish you all kinds of luck. Plus, you might try Magnesium oil rubbed on your legs. That seemsto help some people.

hamzehlou

Posted by @hamzehlou, Jul 10, 2012

hi Bettyann, thank you for your concern and suggestion, I will consider it. ty again.

angel404

Posted by @angel404, Jul 11, 2012

I've been on LOTS of sites gathering info and I see now that you must avoid certain foods, such as SUGAR!! I believe that ,in many cases, a person's brain lacks an appropriate amt of dopamine, so foods that aid in giving this to the brain, PLUS exercise (I bought an exercise bike) seem to help. Certain exercises that stretch the backs of the legs also help. Pain pills don't help as it's NOT a pain that I have......it's the sensations in the legs that make being still horrible! Any thoughts on what I have written here?

hamzehlou

Posted by @hamzehlou, Jul 11, 2012

Thanks Angel, I will try avoiding sugar and doing exercises but I am tolerating pains by the help of pain killers, may be the pain pills u get is not that much strong. Of course i dont confirm the solution of taking pain killers pills but want to say this pain can be toleratable by pain pills too.

lovinjesus

Posted by @lovinjesus, Jul 11, 2012

I never eat sugar, I am a vegetarian and still have RLS. I don't take pain pills or anything for it from the doctor because my doctor wanted me on antidepressants and said they would help my RLS; I tried for a few weeks and it didn't help. Now I'm trying herbal supplimets. No one understands why we are not rested when we get up. I have had people criticize and make light of it likes it's in my head and I feel like wishing they had it so they would know how I feel. Not to nice to do that though.

angel404

Posted by @angel404, Jul 11, 2012

Here is an excellent site http://www.rlcure.com/dopamine.html
It may state WHY we have RLS.

angel404

Posted by @angel404, Jul 11, 2012

Go to

http://therestlesslegsblog.wordpress.com/2010/05/18/the-restless-legs-diet-chapter-three-%e2%80%93-sugar/

Excellent info.

hamzehlou

Posted by @hamzehlou, Jul 11, 2012

thanks angel, it was so useful, i mean the site,

lovinjesus

Posted by @lovinjesus, Jul 11, 2012

Oh, very interesting. I did try the curcumin in a Homeopathic (pellets that disolve under the tongue) but it didn't help as far as I know. You have to wait weeks and sometimes months to see results for Homeopathic Remedies to work because they are very slow. They don't coverup the problem nor fix the problem, however they do teach you body to do what it's supposed to do. That's why Homeopathic Remedies are so slow. Since peoplewant to make fun and say it's all in my head, maybe I should just stand on my head fr a few minutes a couple time a day and get some things unclogged. LOL

http://www.abchomeopathy.com/c.php/145

hamzehlou

Posted by @hamzehlou, Jul 12, 2012

Tonight i tolerated the worst pain i had experienced in last year. I hate traveling as it makes this pain to be more sever.

lizkat

Posted by @lizkat, Jul 12, 2012

i take Mirapex (pramipexol in generic)
Works like a charm for me!

Best of luck
LizKat

hamzehlou

Posted by @hamzehlou, Jul 12, 2012

I ll try it as soon as get back home. Thanks.

lovinjesus

Posted by @lovinjesus, Jul 13, 2012

Hi LizKat. You take Mirapex for RLS? I have never heard of it. I'll look that up and maybe mention it to my dctor. Thanks, Gerri

lovinjesus

Posted by @lovinjesus, Jul 13, 2012

Oh, that's is not good. I would think traveling would make things much worse; not being able to stretch and walk when you get tired. I feel for you; I really do. I pray you can somehow get some relief. Smiles to ya, Gerri

piglit

Posted by @piglit, Jul 13, 2012

Hi I too experience leg pain due to another problem. When travelling if you are flying it's may help to get up and move the legs and also if your'e driving take breaks and walk around. Only a suggestion hope it helps Piglit

lovinjesus

Posted by @lovinjesus, Jul 13, 2012

Just found this. I think it's glorious news. http://chealth.canoe.ca/drug_info_details.asp?brand_name_id=5348&rot=4 Is used for Parkins Disease and RLS. Smiles to ya, Gerri

piglit

Posted by @piglit, Jul 13, 2012

hi lovingjesus nice to meet you. I' work as a high care aged worker. I work with people who have parkinsons, dementia stroke etc. I think that it's good if people are made aware of medications that may assist them. However no medication should be changed or taken unless prescribed and advised by their GP. Take care Piglit

lovinjesus

Posted by @lovinjesus, Jul 13, 2012

Hi piglit, Its good to meet you.
. Yes, I fully agree. Smiles to ya, Gerri

piglit

Posted by @piglit, Jul 13, 2012

Hi Gerri it's good to meet you too. Smiles back Piglit

hamzehlou

Posted by @hamzehlou, Jul 13, 2012

Thanks Gerri

Anonymous likes this
hamzehlou

Posted by @hamzehlou, Jul 13, 2012

Thanks Gerri

lovinjesus

Posted by @lovinjesus, Jul 13, 2012

You are very welcome

nightdancer

Posted by @nightdancer, Jul 18, 2012

Obviously, if you have not seen a doctor aqbout this you need to. 2 very helpful web sites are http://www.rlshelp.org. Go to the treatment page. See the emds to use and to avoid, plus foods also. In the US there is Mirapex, Requip, plus an extended release form of each with XR after the name. Also, there are anticonvulsants called Neurontin that help some people, especally if you have pain. also, the Neupro patch was approved for use finally. I know this web site has all of this info too. Get curious, look up information; you will find that unless you get a good doctor who has treated RLS patients before, regular GP's may not know what drugs to prescribe. A neurologist is agood fit, since this is neurological condition, or a sleep specialist. You need all the info you can get when you first see a doctor. the more you know, the more you are in control. There is no cure, but lots of help in the right places. Online support groups are great, and I manage several and have for the last 15 yrs. I would not still be on this earth if it were not for my RLS groups.

d3marieh

Posted by @d3marieh, Aug 11, 2012

Crazy as this might sound...slowed bowel movements press on those nerves (pain med's slow your system way, way down) My gastro doctor had me start using MIRALAX (over the counter, but you can get prescrips also) twice a day. Once that started working as I thought it was, but it apparently wasn't my legs at night started hurting. Also, low back (need a back MRI) from a bone fracture can cause that. Two things to check out before trying more serious med's. Give it two weeks on the Miralax and see if you notice anything. Can't hurt to try it. It worked for us. We swear by the stuff now.

d3marieh

Posted by @d3marieh, Aug 11, 2012

Sorry MEANT LEGS STOPPED HURTING AT NIGHT.

stephmarta

Posted by @stephmarta, Mar 12, 2013

Requip ,generic name ropineral. I have it BAD, BAD BAD, This works

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